Amber Meade endured years of debilitating pain before being diagnosed with a rare condition that made her feel as though she was "walking on a hot bed of Legos." The intense pain significantly impacted her quality of life, hindering her ability to perform everyday tasks. After a long and frustrating search, Meade finally found a treatment that provided relief, highlighting the challenges faced by individuals with rare and difficult-to-diagnose conditions and the importance of continued medical research.